Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
A look inside the app When it comes to managing life with Fanconi anemia (FA), knowledge is power. That’s why FA researchers, adults with FA, and the FARF team have been working to increase education and empowerment for all people with FA. ...
Announcements, Cancer, Cancer Risk, Lesions, Screening
The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...
Stories
Dr. Garcia-Escudero (center), and his research team The stats: Name: Ramon Garcia-Escudero, PhD Institution: Molecular and Translational Oncology Division at CIEMAT, Centro de Investigacion Biomedica en Red de Cancer, and Research Institute Hospital 12 de Octubre, Madrid, Spain Area of expertise: Disease...
Stories
The Athens family: Vicki (L), Andrew, Andy, Christian Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). The pregnancy was normal until the sixth month, when the ultrasound showed...
Stories
Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA: My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...
Stories
Caregiver coaching is essential to my wellbeing. Having a child with Fanconi anemia can be isolating, even with a large and steadfast support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand,...
Stories
