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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

No Longer an Orphan

Introduction My subject was born an orphan in 1927. With no known relatives and no connections to a wider community, what followed were 60 years of abandonment. In 1985, one courageous family decided that this isolation had gone on long...

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9th Fanconi Anemia Day Raises $52,000

FA Day Brings Families Together to Make an Impact May 1 is International Fanconi Anemia Day, a day This year, 30 FA families and community members held fundraisers throughout the United States, with two in the Dominican Republic and Oman!...

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5K for FA Raises $28,000

Hundreds of runners, walkers, volunteers, family and friends gathered in Hilton, NY for the 4th annual 5K for FA on May 5. The run/walk is held in honor of 13-year-old Eli Lana, who has FA. Each year, the event has...

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Two Clinical Trials Funded

Metformin (N,N-dimethylbiguianide) has been shown to be a safe oral medication widely used for many decades to treat high blood sugar. Recently, there has been renewed interest in metformin given its anti-oxidant properties, aldehyde scavenging capability, and potential cancer-protective effects....

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#ThisIsHowIFA: Fanconi Anemia Day

This year’s slogan is #ThisIsHowIFA. Inspired by Matt Pearl, an adult with FA, #ThisIsHowIFA reflects the many people it takes to make a difference and find a cure. Matt says “FA means Find Answers. FA means Fight Always.” People with...

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