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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

The Endure for a Cure RAGBRAI team This summer, a remarkable team of individuals united as “Endure for a Cure” in support of the Fanconi anemia (FA) community to achieve something truly extraordinary: bike over 500 miles while raising an...

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Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.

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Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat

Hope We learned more about FA from nationally renowned doctors and researchers. They didn't sugar-coat their findings about this disease, but they did offer a consistent message of hope. More than a decade ago, the life expectancy for someone with...

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Introducing FAexam, the essential screening app for people with FA

A look inside the app When it comes to managing life with Fanconi anemia (FA), knowledge is power. That’s why FA researchers, adults with FA, and the FARF team have been working to increase education and empowerment for all people with FA. ...

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Our Path Through Fanconi Anemia and Mental Resilience

The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...

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Scientist Spotlight: Ramon Garcia-Escudero

Dr. Garcia-Escudero (center), and his research team The stats: Name:  Ramon Garcia-Escudero, PhD Institution: Molecular and Translational Oncology Division at CIEMAT, Centro de Investigacion Biomedica en Red de Cancer, and Research Institute Hospital 12 de Octubre, Madrid, Spain Area of expertise: Disease...

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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