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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Let’s Meet at the Porch?

Oct 23rd, 2018

Our only child, Marina, is a lovely, sweet girl who loves going to the beach and riding bicycles (especially at her grandparents’ farm). She is 11 years old and we are so thankful she is doing well. Just after her...

Stories

Caregiver Job Description

Oct 9th, 2018

Caregiver Position Description Position Summary: The Caregiver cares for the patient’s medical, physical, emotional, spiritual, mental, social-emotional, financial, organizational, and dietary needs. Reporting to: This position reports to the patient, medical staff, the patient’s mother, other family members, friends, acquaintances, and the...

Stories

Ten of the Best Things about FA Family Camp

Sep 6th, 2018

Every summer, families affected by FA from come together at Camp Sunshine in Casco, Maine for five days. The Family Meeting (or Family Camp) is a special event that allows families to hear from expert FA researchers and physicians, to attend support...

Stories

Global Fanconi Anemia Gene Therapy Program Update

Aug 22nd, 2018

The global Fanconi anemia gene therapy program will continue to be available for patients in the USA and Europe during 2018 and 2019. In Europe, a new study, known as FANCOLEN-2, will be available at CIEMAT/Hospital del Niño Jesús in Madrid,...

Announcements

New FA Research Funded

Jul 12th, 2018

We are excited to fund four new research projects, two targeting the blood problems in Fanconi anemia, and two focusing on understanding cancer in FA. Read about each project: Investigator: Agata Smogorzewska, MD, PhDInstitution:The Rockefeller University, New York City, New YorkTitle:...

Announcements