News

Featured Story

2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

How Our Family Channeled Grief Into Hope

Our Mighty Mouse Well before her diagnosis of Fanconi anemia (FA), our daughter Norah was a model in resiliency for us. Born at just five pounds and three ounces, she had the strongest heartbeat on the hospital floor, surprising us...

Read More >

The Family Meeting in Photos

Every summer, families affected by FA come together at Camp Sunshine in Casco, Maine for five days. The Family Retreat (or Family Camp) is a special event that allows families to hear from expert FA researchers and physicians, to attend support groups...

Read More >

Top 10 Reasons to Attend the Meeting for Adults with FA

1. Find your people “I went from knowing one person with FA to knowing over 40! They know exactly what it’s like to have a dozen different doctors and some kind of test every month or so. They know what...

Read More >

FARF Tank

Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project Guidelines: Open to grad students, post-docs,...

Read More >

A Mother’s Appeal

Do you make resolutions for the New Year? I used to, but they wouldn’t last very long, so I found myself making new, monthly resolutions. This technique is a variation of a technique I learned in my twenties. My employer...

Read More >

Aldehydes inhibitor may help protect stem cells

What are aldehydes and what do they do?  Research has shown that small molecules called aldehydes cause DNA damage and increase the potential for bone marrow failure. Aldehydes are formed within our bodies (endogenous) and from sources outside our bodies...

Read More >