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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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DNA strands

Caregiver Profile: Mary Tanner

Aug 4th, 2020

Caregivers are essential to the wellbeing of their loved ones. Often, the focus is on the person with Fanconi anemia, yet caregivers live their own FA journey. In an effort to hear more of these experiences, our friend Allison from The...

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Stories

Fundraising Wins: 2019-2020

Jul 28th, 2020

2019 was a record-breaking year for fundraising at FARF. We saw a 32% overall increase in fundraising dollars, which was made possible, in huge part, to the number of families fundraising increasing by 10%. We are so proud of this...

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Announcements

Our Journey to Emma

Jul 14th, 2020

We eventually took a leap of faith and traveled to Chicago for a consultation. In our initial meeting we learned that our odds of conceiving a child were about 25%. However, if we then screened for FA and for a...

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Stories

Exit Interview

Jun 17th, 2020

Read Sharon’s popular piece on the history of Fanconi anemia: No Longer an Orphan - the FA Story

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Stories

We Will Do Better

Jun 5th, 2020

To the FA community, Currently, we are confronted with the challenges of two public health crises: the ongoing COVID-19 pandemic and the enduring system of racial injustice in the United States.The Fanconi Anemia Research Fund supports the Black community and...

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Announcements

Caregiving During Covid

Jun 5th, 2020

Caregivers,I see you watching your person even more closely than before, noting the way he breathes, questioning if it seems more shallow than normal.I see you reading between the lines of every article, trying to discern just how bad this...

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