Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Originally published February 28, 2021 on The Negative Space My husband is one of the 30 million Americans living with a rare disease. Fanconi anemia (FA) has no color recognizable by the general public. You can’t buy cereal or water bottles...
Stories
Right after his transplant, and before Joel was discharged from MSKCC, we received the news that he had another condition called myeloproliferative neoplasm (MPN). At that time, we weren’t worried about it. We were just so overwhelmed by the love...
Stories
Last updated May 14, 2021. This page will be updated as more information becomes available. This statement was written with the input of the National Organization for Rare Diseases and clinicians specialized in treating Fanconi anemia patients. In December 2020, two COVID-19 vaccines...
Announcements
Tara Cleary Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most. We must always believe medical answers are right...
Stories
People with Fanconi anemia (FA) are at a very high risk of developing head and neck cancers because of the underlying DNA repair problem in FA. Research is the key to understanding, diagnosing, and treating these cancers. That’s why the...
Announcements
Zach’s mom recently shared: “FARF has been a big player in saving Zach’s life this year. Yes, it really is that simple. FARF has helped us find doctors and proper treatment plans every step of the way.” FARF Executive Director
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