October 18, 2018, the sweet wait came to an end. During pregnancy, emotions are always on the surface. You imagine what it will be like to have the baby in your arms and even what kind of education you want...

Originally published February 28, 2021 on The Negative Space My husband is one of the 30 million Americans living with a rare disease. Fanconi anemia (FA) has no color recognizable by the general public. You can’t buy cereal or water bottles...

Right after his transplant, and before Joel was discharged from MSKCC, we received the news that he had another condition called myeloproliferative neoplasm (MPN). At that time, we weren’t worried about it. We were just so overwhelmed by the love...

Tara Cleary Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most. We must always believe medical answers are right...