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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

My Joel

Right after his transplant, and before Joel was discharged from MSKCC, we received the news that he had another condition called myeloproliferative neoplasm (MPN). At that time, we weren’t worried about it. We were just so overwhelmed by the love...

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Covid-19 Vaccine & Fanconi Anemia

Last updated May 14, 2021. This page will be updated as more information becomes available. This statement was written with the input of the National Organization for Rare Diseases and clinicians specialized in treating Fanconi anemia patients. In December 2020, two COVID-19 vaccines...

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Our Journey with FA and Brain Lesions

Tara Cleary Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most. We must always believe medical answers are right...

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FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

People with Fanconi anemia (FA) are at a very high risk of developing head and neck cancers because of the underlying DNA repair problem in FA. Research is the key to understanding, diagnosing, and treating these cancers. That’s why the...

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How You’re Making a Difference: Zach’s Story

Zach’s mom recently shared: “FARF has been a big player in saving Zach’s life this year. Yes, it really is that simple. FARF has helped us find doctors and proper treatment plans every step of the way.” FARF Executive Director

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Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure. Solid tumors What is the issue and how does it affect people...

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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