Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
https://youtu.be/le6Xm2XfQrk Robin's acceptance speech The Winn/Byrd award helps Robin and Jolandie start the next chapter of their journey. Importantly, it’s allowed them to add a much-needed housing section to “Betsy”. If you would like to learn more about Numinous Expeditions’...
Announcements
While the FA Research Fund is based in the United States, FA research, families, and support organizations span the entire globe. To strengthen the efforts of our partners in the international FA community, FARF established the International FA Support Grant...
Announcements
The FA Diagnosis I received the actual FA diagnosis in 2020, after years of wondering what was causing my low blood counts. By the time I was finally diagnosed, my health was on a downward trend. Thankfully, my diagnosis allowed...
Stories
It is not easy, but we do our best to live day by day. We have learned that we can laugh in the midst of pain. We work hard to seek answers for ourselves and others who are affected by FA in...
Stories
Dr. Minguillon with his brother and mother
Stories
