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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Turning My Hardships into An Epic Journey

Oct 4th, 2021

I am passionate about traveling and I hope to be able to travel more in the future. I try to make the best out of hard situations. It is not always easy to do, but I realize that without all...

Stories

Scientist Spotlight: Lindsey Romick

Oct 4th, 2021

What motivates me to work on FA: The FA community motivates me every single day. I was lucky enough to be invited to Camp Sunshine in June 2012 as a brand new postdoc in Dr. Susa Wells’ lab. I had...

Stories

Updates from the 2021 FA Symposium

Oct 4th, 2021

The FARF Symposium was held in a virtual four-part series format during the month of July 2021. Fanconi anemia (FA) researchers and clinicians met virtually to share updates on specific topics including gene therapy, bone marrow failure, DNA repair, and...

Announcements

Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

Sep 8th, 2021

https://youtu.be/le6Xm2XfQrk Robin's acceptance speech The Winn/Byrd award helps Robin and Jolandie start the next chapter of their journey. Importantly, it’s allowed them to add a much-needed housing section to “Betsy”. If you would like to learn more about Numinous Expeditions’...

Announcements

Donors Enable Change Around the World

Jul 20th, 2021

While the FA Research Fund is based in the United States, FA research, families, and support organizations span the entire globe. To strengthen the efforts of our partners in the international FA community, FARF established the International FA Support Grant...

Announcements