Click to read about FARF co-founder Lynn Frohnmayer’s mission to continue fighting Fanconi anemia.
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Dec 11th, 2024
This virtual meeting is an opportunity for individuals diagnosed with Fanconi Anemia Neurological Syndrome (FANS) and their families to gather, share experiences, and find mutual support for navigating FANS. Registration is required and participants must speak English as interpretation is...
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Oct 4th, 2024
Hello, this is FA Adult Council member Lexi Marshall with a recap of the FA Adult Retreat in Charlotte, North Carolina. To back up, I attended my first FA Adult Retreat and Scientific Symposium as a newly diagnosed person with...
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Apr 1st, 2024
The 2025 Scientific Symposium will be held in Minneapolis, Minnesota from September 25-28. We hope to see you there! What is the Symposium? The Scientific Symposium serves as a vital platform for the exchange of knowledge and ideas in the...
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