“Despite a rare, incurable disease, Amy Frohnmayer Winn ran joyfully through her limited time on earth, making the most of every mile—and every moment.”
Click here to read the full article about Amy Winn in Runners World magazine, out 6/12/2017.
The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate...
In the FA community, we may experience grief at the loss of members of our FAmily, grief about parts of our lives that are different than we expected, and anticipatory grief about the losses we predict may occur. Join fellow...
The 2024 Scientific Symposium will be held in Charlotte, North Carolina, from September 19-22. We hope to see you there! What is the Symposium? The Scientific Symposium serves as a vital platform for the exchange of knowledge and ideas in...