Click to read about FARF co-founder Lynn Frohnmayer’s mission to continue fighting Fanconi anemia.
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Feb 25th, 2025
This virtual meeting is an opportunity for individuals diagnosed with Fanconi Anemia Neurological Syndrome (FANS) and their families to gather, find mutual support for navigating FANS, and hear from leading FANS physician and researcher, Dr. Stella Davies. Dr. Davies is...
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Apr 2nd, 2024
The Retreat for Adults with FA takes place every fall in a different city. It’s an opportunity for individuals with FA ages 18+ to meet other adults with FA, learn about medical and research updates, attend support sessions, and participate...
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Apr 1st, 2024
The 2025 Scientific Symposium will be held in Minneapolis, Minnesota from September 25-27. We hope to see you there! Visit the Symposium website here to register! What is the Symposium? The Scientific Symposium serves as a vital platform for the...
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