News

Dr. Blanche Alter retires after more than 40 years in the Fanconi anemia field

Dr. Alter at Camp Sunshine during Fanconi Anemia Week If you’ve ever been to a Fanconi anemia (FA) Scientific Symposium or Family Meeting, chances are you attended an FA 101 presentation given by Dr. Blanche Alter. There’s a reason that...

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Journey of a Thousand Miles Begins With One Step

We began a fundraising campaign to raise $100,000 (USD) which was required for the transplant in India ($45,000 for the transplant, $35,000 for the donor and $20,000 for airfares and living expenses in India for the entire family for six...

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Turning My Hardships into An Epic Journey

I am passionate about traveling and I hope to be able to travel more in the future. I try to make the best out of hard situations. It is not always easy to do, but I realize that without all...

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Scientist Spotlight: Lindsey Romick

What motivates me to work on FA: The FA community motivates me every single day. I was lucky enough to be invited to Camp Sunshine in June 2012 as a brand new postdoc in Dr. Susa Wells’ lab. I had...

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Our Faith and Fanconi Anemia

The FA Diagnosis I received the actual FA diagnosis in 2020, after years of wondering what was causing my low blood counts. By the time I was finally diagnosed, my health was on a downward trend. Thankfully, my diagnosis allowed...

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