News

I Am a Fighter and a Cancer Survivor

Hi, my name is Michelle and I’m from a small town outside of Pittsburgh, Penn. Like a lot of teenagers, I had big dreams and goals for what I was going to do with my life. I knew early on...

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Scientist Spotlight: Sara Frias

What motivates me to work on FA: Patients with FA are my motivation. Knowing the importance of efficient DNA repair mechanisms makes you realize that we continuously live rescuing each one of our cells from potentially fatal injuries suffered by...

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Dr. Blanche Alter retires after more than 40 years in the Fanconi anemia field

Dr. Alter at Camp Sunshine during Fanconi Anemia Week If you’ve ever been to a Fanconi anemia (FA) Scientific Symposium or Family Meeting, chances are you attended an FA 101 presentation given by Dr. Blanche Alter. There’s a reason that...

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Journey of a Thousand Miles Begins With One Step

We began a fundraising campaign to raise $100,000 (USD) which was required for the transplant in India ($45,000 for the transplant, $35,000 for the donor and $20,000 for airfares and living expenses in India for the entire family for six...

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Turning My Hardships into An Epic Journey

I am passionate about traveling and I hope to be able to travel more in the future. I try to make the best out of hard situations. It is not always easy to do, but I realize that without all...

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Scientist Spotlight: Lindsey Romick

What motivates me to work on FA: The FA community motivates me every single day. I was lucky enough to be invited to Camp Sunshine in June 2012 as a brand new postdoc in Dr. Susa Wells’ lab. I had...

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Join us at the upcoming #FCFSymposium and FA Adult Retreat September 19- 22 in Charlotte, North Carolina.
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