Tara Cleary Eternal hope. Of all the characteristics that Fanconi anemia (FA) may or may not bring out in any of us, this is the one that will help us the most. We must always believe medical answers are right...
Stories
News
Zach’s mom recently shared: “FARF has been a big player in saving Zach’s life this year. Yes, it really is that simple. FARF has helped us find doctors and proper treatment plans every step of the way.” FARF Executive Director
Stories
In 2018, we managed to attend the German Fanconi Family Meeting. It was nice to meet FAmilies and find answers to many of our questions. In Germany, it was confirmed that Omar needed a bone marrow transplant as soon as...
Stories
Congratulations to Maria Isabel Rodríguez Ribero! Maria is a mother, English teacher, master’s student, and community volunteer who lives in San Gil, Colombia. Now 33 years old, Maria was diagnosed at age 11. As a teenager, Maria remembers not understanding...
Stories
In hindsight, while I wouldn’t wish the way we found out about Elliott’s condition on anyone, it gave us time to reflect and be prepared to fight for Elliott. Included in the test results was a link to the Fanconi...
Stories
Caregivers are essential to the wellbeing of their loved ones. Often, the focus is on the person with Fanconi anemia, yet caregivers live their own FA journey. In an effort to hear more of these experiences, our friend Allison from The...
Stories