News

In Loving Memory of Imroze Marzban Ardeshir

April 15, 1983 – December 27, 2017By Daisy & Marzban Ardeshir The story below was shared by Imroze’s parents, Daisy and Marzban Ardeshir, in remembrance of their daughter’s strength, grace, and enduring spirit. Our second child, Imroze, was diagnosed with...

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Hope for Hunsley: Carrying My Daughter’s Legacy Forward

If you asked me for a defining memory of our journey, it might surprise you. Some of my most cherished moments were the long hospital stays — the time I got to spend one-on-one with Hunsley, free from the distractions of the world.

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Trailblazing a Path: Meet Actor, Advocate, and Creator Cale Ferrin

At just 18 years old, Cale Ferrin has already built a career as an actor, advocate, and creator. With appearances across TV, film, music videos, and ad campaigns, Cale’s passion for storytelling shines through each project he approaches. His work...

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Honoring the Life and Legacy of Sharon Schuman

It is with full hearts and deep sadness that we remember our dear friend, long-time supporter, and former board member, Sharon Schuman, who passed away on April 23, 2025, following a tragic accident near her home in Eugene, Oregon. Her...

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From Intuition to Action: Advocacy and Hope with FA

By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...

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Collaborating for Progress: A Parent’s Journey with FA and Advocacy

By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...

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