News

It Takes a Village to Save a Life: Katherine’s Story

“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...

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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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Introducing FAexam, the essential screening app for people with FA

A look inside the app When it comes to managing life with Fanconi anemia (FA), knowledge is power. That’s why FA researchers, adults with FA, and the FARF team have been working to increase education and empowerment for all people with FA. ...

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