News

Updates from the 2021 FA Symposium

The FARF Symposium was held in a virtual four-part series format during the month of July 2021. Fanconi anemia (FA) researchers and clinicians met virtually to share updates on specific topics including gene therapy, bone marrow failure, DNA repair, and...

Read More >

Robin Lewis receives 2021 Winn/Byrd Award for Adults with FA

https://youtu.be/le6Xm2XfQrk Robin's acceptance speech The Winn/Byrd award helps Robin and Jolandie start the next chapter of their journey. Importantly, it’s allowed them to add a much-needed housing section to “Betsy”. If you would like to learn more about Numinous Expeditions’...

Read More >

Donors Enable Change Around the World

While the FA Research Fund is based in the United States, FA research, families, and support organizations span the entire globe. To strengthen the efforts of our partners in the international FA community, FARF established the International FA Support Grant...

Read More >

Covid-19 Vaccine & Fanconi Anemia

Last updated May 14, 2021. This page will be updated as more information becomes available. This statement was written with the input of the National Organization for Rare Diseases and clinicians specialized in treating Fanconi anemia patients. In December 2020, two COVID-19 vaccines...

Read More >

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

People with Fanconi anemia (FA) are at a very high risk of developing head and neck cancers because of the underlying DNA repair problem in FA. Research is the key to understanding, diagnosing, and treating these cancers. That’s why the...

Read More >

Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure. Solid tumors What is the issue and how does it affect people...

Read More >