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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

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The Genetic Revolution for Fanconi Anemia Begins Now 

World-Renown Experts Take On the Root of the Problem The long-awaited genetic revolution for rare genetic diseases has arrived and with it, the potential to cure diseases like FA within our lifetimes using state-of-the-art gene therapy (gene replacement) and gene...

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How to Declare May as Fanconi Anemia Month in Your State

What is a proclamation? An official announcement, in this case by a government official, to the public about an important issue, event, or action. Why is it important? Raising awareness at the government level and among the public may lead...

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Introducing FAexam, the essential screening app for people with FA

A look inside the app When it comes to managing life with Fanconi anemia (FA), knowledge is power. That’s why FA researchers, adults with FA, and the FARF team have been working to increase education and empowerment for all people with FA. ...

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2023 Research Updates

The Latest on FA Research Research is the answer to one day making FA a treatable, manageable disease. On this page you’ll find the latest updates on FARF-funded research and activities. Each quarter, we’ll update this list with our newly...

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Now Recruiting: Study to improve early detection of cancer and clinical care

Enroll in study The National Cancer Institute (NCI) investigators Dr. Neelam Giri and Dr. Sharon Savage have teamed up with the Fanconi Anemia Research Fund (FARF) as part of the FA Cancer Consortium to develop a comprehensive program to screen...

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