This year’s slogan is #ThisIsHowIFA. Inspired by Matt Pearl, an adult with FA, #ThisIsHowIFA reflects the many people it takes to make a difference and find a cure. Matt says “FA means Find Answers. FA means Fight Always.” People with...
Announcements
Applications for the 2018 Amy Winn & Christopher T. Byrd Award for Adults with Fanconi Anemia are due July 13, 2018. This $5,000 award is given annually to someone who, like Chris and Amy, is striving to make a difference...
Announcements
Sharon Schuman, long-time supporter and board member, held the 19th annual Concert and Wine benefit for the Fanconi Anemia Research Fund on April 8 in Eugene, Ore. Each year, Sharon invites different musicians to play select pieces. The concert attendees...
Stories
We are pleased to welcome longtime FARF supporter and FA parent Orion Marx to the Board of Directors. Following years of experience in the economic sector, Orion founded Atlas Financial, a firm which helps clients with financial, estate and business...
Announcements
