FA publication spotlight In the September 2019 issue of Blood Reviews, FA researchers published a paper reviewing the literature on Fanconi anemia. We asked the authors to provide a summary. Thank you, Dr. Blanche Alter. Authors on the paper: Fiesco-Roa MO,...
Announcements
Our Mighty Mouse Well before her diagnosis of Fanconi anemia (FA), our daughter Norah was a model in resiliency for us. Born at just five pounds and three ounces, she had the strongest heartbeat on the hospital floor, surprising us...
Stories
Every summer, families affected by FA come together at Camp Sunshine in Casco, Maine for five days. The Family Retreat (or Family Camp) is a special event that allows families to hear from expert FA researchers and physicians, to attend support groups...
Announcements
1. Find your people “I went from knowing one person with FA to knowing over 40! They know exactly what it’s like to have a dozen different doctors and some kind of test every month or so. They know what...
Announcements
Do you have an idea for a research project and need funding to develop it? We want to hear about it. Introducing FARF Tank: a chance to win a $10,000 grant for your project Guidelines: Open to grad students, post-docs,...
Announcements
Do you make resolutions for the New Year? I used to, but they wouldn’t last very long, so I found myself making new, monthly resolutions. This technique is a variation of a technique I learned in my twenties. My employer...
Stories
