Our Research

Advancing treatments and searching for a cure

To advance treatments and find a cure for FA, we must think big, set bold goals, and fund the best research. Since FARF was established in 1989, we have awarded 228 grants to 149 investigators at 74 institutions worldwide. Donors have seen their gifts multiply in that pilot grants from FARF have enabled many FA researchers to go on to receive major grants for FA research from the National Institutes of Health and other funding sources worldwide.

Donations have helped us advance FA science more rapidly than ever thought possible. For example, no FA genes had been identified in 1989. Today, 22 genes have been discovered. Bone marrow transplant success rates for FA patients with a matched unrelated donor have risen from 0% in 1989 to over 87% today in some transplant centers that specialize in Fanconi anemia. Matched sibling donor transplants have risen from a 35% success rate to close to 100% today in those centers.

Read About our Research

Advancing Fanconi Anemia Science

We believe that research is the answer to one day making Fanconi anemia a treatable condition rather than a fatal disease. After years dedicated to gene identification, improving bone marrow transplantation, and uncovering connections to breast and other cancers, FA scientists are now poised to create less toxic therapies and improve and extend lives. Read about our funded research.