Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Mark Quinlan
Outgoing Executive Director
Mark has served as Executive Director for the Fanconi Cancer Foundation since 2017. As Executive Director, Mark oversees all facets of operations, finances, and program development, while expanding the donor base, investigating new revenue sources, and elevating impact. He leads with empathy, inclusivity, and unwavering dedication to the cause. He has obtained a bachelor’s degree in Social and Behavior Science and a master’s in Public Administration, which have helped shape his leadership style. He strives to enact meaningful change and positive growth and feels most fulfilled when he is helping others.
“I love knowing that when I go to work each day I have the ability to affect the lives of others in a positive way.” Mark’s love of the outdoors brought him from his native Minnesota to the mountains of the west to pursue his career in nonprofit management while still nourishing his love of nature. He now lives in Coburg, Oregon, with his wife Cheryl. In addition to cycling and fly-fishing, Mark enjoys traveling and experiencing other cultures.
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I am a poet, a writer, and a storyteller. I’m also a student, and an older brother to a young man with FA and special needs. I’m a DACA recipient. I’m here. I’m present. I am more than my current mental state, and more than this diagnosis.
People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.