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María Guadalupe

María Guadalupe is a Mexican mother of two teenagers—Layla Quetzali and Itza Alejandra, the latter of whom lives with FA. María works as a preschool director in Mexico City. An empathetic woman who enjoys writing about feelings arising from everyday life, she is committed to supporting children—including those with Fanconi anemia—and their families in managing emotions, helping them recognize and cope with their feelings throughout the course of the illness.

María Guadalupe

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A Place to Connect, Grow and Belong

The Family Retreat offers families a break from appointments, treatment decisions and everyday responsibilities. Children can try new activities and grow in confidence while caregivers learn, share practical support and connect with one another. The relationships formed at camp often continue long after everyone goes home.

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Why We Need a Real Cure 

By Cecilia Córdoba, mother of Agustina Milagros Kaucic When my daughter Agustina was 2 and a half years old, our lives changed forever. It was very difficult to reach a diagnosis. And when we finally received it, it was devastating....

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The FA Memorial Wall: A Space to Remember

The children and adults with FA are why we’re all here. They are the reason for the countless hours spent in the lab, the energy poured into fundraisers, the conversations we have with anyone willing to listen, and the reason...

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