When I was 20 weeks pregnant, my doctor recommended an amniocentesis so we could find out what was causing concerns during my pregnancy. They took amniotic fluid for testing, and that's when my husband and I learned our daughter had a rare genetic disorder called Fanconi anemia (FA). We found out that we were both carriers, something we had never known.
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María Guadalupe
María Guadalupe is a Mexican mother of two teenagers—Layla Quetzali and Itza Alejandra, the latter of whom lives with FA. María works as a preschool director in Mexico City. An empathetic woman who enjoys writing about feelings arising from everyday life, she is committed to supporting children—including those with Fanconi anemia—and their families in managing emotions, helping them recognize and cope with their feelings throughout the course of the illness.
María Guadalupe
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