Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Kevin McQueen
Board Member | MBA
Father of Sean
Kevin is CEO at CapTech Ventures, an IT management consulting firm based in Virginia. His son, Sean, was diagnosed with FA in 2000 at one-year-old. He and his wife, Lorraine, fundraise tirelessly for FARF, holding several events each year. They have raised over $1 million for FA research and family support services. Kevin also serves on the board of directors for the Big Brothers, Big Sisters Foundation.
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When Annzie was six, what started as a routine well visit turned our world upside down. She had always been small for her age, but that visit revealed more: recurring infections and low platelet counts that led to urgent bloodwork. We were referred to hematology, and that began our FA journey.
I am a poet, a writer, and a storyteller. I’m also a student, and an older brother to a young man with FA and special needs. I’m a DACA recipient. I’m here. I’m present. I am more than my current mental state, and more than this diagnosis.