Czechowicz lab at Stanford Promising research needs continued support to answer the next question. A laboratory finding may need testing in more models. A screening study may need years of follow-up. An approach ready for a clinical study needs the...
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Kelsey McQueen
Kelsey McQueen is a genetic counselor working for a patient advocacy organization in Virginia. Her younger brother was diagnosed with Fanconi anemia shortly after birth and has more recently developed complications related to Fanconi anemia neurological syndrome (FANS). Since his diagnosis, her family has been deeply engaged with FCF, contributing to fundraising and community outreach efforts. Kelsey is particularly passionate about advancing awareness and research focused on FANS to support the development of improved treatment approaches.
Kelsey McQueen
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How can we prevent cancer in people with FA? How can treatments become safer? At the 2026 FA Scientific Symposium in Phoenix, researchers shared progress toward answering these questions, alongside work to protect blood-forming cells and better understand the broader effects of FA. Some approaches are entering clinical studies. Others are helping researchers decide which ideas deserve further testing.
More than four decades ago, Lynn Frohnmayer was a mother searching for answers after learning that three of her five children had Fanconi anemia. There was no roadmap and no established network of families or experts. Information was scarce, treatments were limited, and the future her family had been given was devastating.