Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Jack Timperley
Member
Jack is 20 and lives in Park Ridge, Illinois, where he is a student of philosophy and business administration at Northeastern Illinois University. Jack has also spoken at several fundraisers all over the country, telling his story and expressing to supporters just how crucial their role is to advancing research. In 2019, he received the Amy Winn and Christopher T. Byrd Award for Adults with FA, for his work as an advocate, speaker, and student determined to make a difference. After he graduates, Jack hopes to pursue a PhD in a philosophy-related discipline and eventually start his own research and technology company.
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Research supported by the Knights has shaped best practices in prevention, early-detection, and treatment strategies for cancer, benefiting people with FA and providing far-reaching benefits for the broader population.

Emily is much more than her diagnosis. She’s an athlete and an artist who loves playing soccer and basketball. She creates paper dragons for her friends, enjoys drawing, and is a proud Swiftie.