Czechowicz lab at Stanford Promising research needs continued support to answer the next question. A laboratory finding may need testing in more models. A screening study may need years of follow-up. An approach ready for a clinical study needs the...
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Cecilia Córdoba
Cecilia Córdoba is the founder of GAAF (Argentine Fanconi Anemia Group) and a member of ALAPA (Argentine Patient Alliance). She is the mother and caregiver of the late Agustina Kaucic; she founded GAAF so that no family in Argentina would feel alone when facing the diagnosis. Since then, she has supported patients and families, disseminated reliable information, and worked to ensure access to diagnosis and treatment. GAAF is part of ALAPA, through which they jointly promote a support network and advocate for the rights of those living with rare diseases.
Cecilia Córdoba
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How can we prevent cancer in people with FA? How can treatments become safer? At the 2026 FA Scientific Symposium in Phoenix, researchers shared progress toward answering these questions, alongside work to protect blood-forming cells and better understand the broader effects of FA. Some approaches are entering clinical studies. Others are helping researchers decide which ideas deserve further testing.
More than four decades ago, Lynn Frohnmayer was a mother searching for answers after learning that three of her five children had Fanconi anemia. There was no roadmap and no established network of families or experts. Information was scarce, treatments were limited, and the future her family had been given was devastating.