Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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Brian Horrigan
Board Member | MA/ABD
Father of Delia
Brian Horrigan is Exhibits Curator at the Minnesota Historical Society, where he is responsible for major exhibits at the Minnesota History Center and historic sites around the state. His daughter, Delia Levine-Horrigan, was born in 1987 and diagnosed with FA at age 11. Since Delia’s diagnosis, Brian and his family has been actively involved in the FA family community. Since 2000, his family has fundraised for the Fund consistently and inspired other families to do the same.
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What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.