Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Directory

André Hessels
Board Member
Father of Dylan & Joy
André became involved with FARF when his two children, Dylan and Joy, were diagnosed with FA in 2013. Since then, he has participated in numerous runs to raise funds, including the New York, Chicago, and Boston marathons. André is a seasoned corporate financing specialist who is currently General Manager for Philips Medical Capital in Wayne, Penn. Originally from the Netherlands, André has worked in Europe, China and North America as a relationship banker for Rabobank. He brings a wealth of financial knowledge to the board and is looking forward to expanding his fundraising efforts.
The Latest
News & Events


Nearly 300 members of the global Fanconi anemia community gathered in Minneapolis for the 2025 Scientific Symposium and Retreat for Adults with FA, three days that blended science, lived experience, and hope.

Research supported by the Knights has shaped best practices in prevention, early-detection, and treatment strategies for cancer, benefiting people with FA and providing far-reaching benefits for the broader population.