Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
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André Hessels
Board Member
Father of Dylan & Joy
André became involved with FARF when his two children, Dylan and Joy, were diagnosed with FA in 2013. Since then, he has participated in numerous runs to raise funds, including the New York, Chicago, and Boston marathons. André is a seasoned corporate financing specialist who is currently General Manager for Philips Medical Capital in Wayne, Penn. Originally from the Netherlands, André has worked in Europe, China and North America as a relationship banker for Rabobank. He brings a wealth of financial knowledge to the board and is looking forward to expanding his fundraising efforts.
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What I hope for most is a cure. And until then, I hope for Paige and others with FA to live lives as close to normal as possible, filled with opportunity, independence, and happiness.
Fear and sadness are embedded with Fanconi anemia (FA), yet I have always tried to have a hopeful tone to my essays thinking of the effect on the families who read it. This one is no different. I lost my gutsy 24-year-old daughter Tara in September. She was created by God for purpose. I always told her she brought out the best in people.