When Ryan was diagnosed with Fanconi anemia (FA) at 18 months old, it was devastating. There were so many unknowns, and trying to gather information online was both frustrating and scary. When we found the Fanconi Cancer Foundation (FCF) and...
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André Hessels
Board Member
Father of Dylan & Joy
André became involved with FARF when his two children, Dylan and Joy, were diagnosed with FA in 2013. Since then, he has participated in numerous runs to raise funds, including the New York, Chicago, and Boston marathons. André is a seasoned corporate financing specialist who is currently General Manager for Philips Medical Capital in Wayne, Penn. Originally from the Netherlands, André has worked in Europe, China and North America as a relationship banker for Rabobank. He brings a wealth of financial knowledge to the board and is looking forward to expanding his fundraising efforts.
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For our family, living with FA means living with faith. We see Liam as a normal, healthy child who continues to grow and surprise us. At the same time, we know there are real challenges.
Advocacy efforts play an essential role in building stronger systems of care for rare diseases. By elevating the experiences of families and engaging policymakers, organizations such as the Ivan & Joan Foundation are helping move rare disease awareness and care forward in their communities.