Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Violet (far right), with her siblings Emma, Fisher, and Tyson Hello, FAmily! My name is Paige, and my three-year-old daughter Violet was diagnosed with Fanconi anemia (FA) in 2020. Violet has three older siblings: two brothers and a sister who...
Stories
Dr. Velleuer with colleagues Mona and Christine, and Bella, who lives with FA
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In early 2022, four new grants were awarded to advance research in cancer preclinical models, Fanconi Anemia Neurological Syndrome (FANS), and mental health. If you’d like to submit a research grant proposal, please contact Isis Sroka, Scientific Director. If you’d like...
Announcements
Noticing the changes During those final two years of hosting the 5K for FA when Eli was 13-14 years old, our family had also suffered several losses, one after another, and we could not catch our collective breath. Eli suffered...
Stories
Hi, my name is Michelle and I’m from a small town outside of Pittsburgh, Penn. Like a lot of teenagers, I had big dreams and goals for what I was going to do with my life. I knew early on...
Stories
My work Recently I became a principal investigator at UNAM, the leading University of Mexico. I maintain a strong interest in studying FA using additional and new technologies, including single cell DNA sequencing, single cell proteomics and single cell imaging....
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