The Aitkins family: Bryan, Jen, London, and Sydney It was a regular Wednesday in early 2019, with all of us heading out the door for school and work. However, our daughter London was suffering from a stomachache. She had been...

The Athens family: Vicki (L), Andrew, Andy, Christian Our journey to the diagnosis of Fanconi anemia (FA) started in 1986 when we conceived a child via In vitro Fertilization (IVF). The pregnancy was normal until the sixth month, when the ultrasound showed...

Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA:   My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...

To begin this story, I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister,...