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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Scientist Spotlight: Tai Nguyen

Presenting at the 2019 FARF Scientific Symposium in Chicago What motivates me to work on FA:   My biggest motivators are people with FA and their families. Witnessing the strength, positivity, and courage of the FA community at my first FARF...

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How Caregiver Coaching Helped Me

Caregiver coaching is essential to my wellbeing. Having a child with Fanconi anemia can be isolating, even with a large and steadfast support system and a loving partner. As much as our family, friends, neighbors, and coworkers try to understand,...

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From Dream to Reality: Empowering Parenthood Through Egg Donation and Surrogacy

To begin this story, I want to share that my dream of being a mother came true because three of the most powerful types of love I know came together: the love of a couple, the love of a sister,...

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My (Continued) Journey with Fanconi Anemia Families

"FA Skyline" art project from Camp Sunshine FA Week How it all started One day, while I was working at Mount Sinai, Dr. Jeffrey Lipton asked me to do him a favor. He asked me to run a support group...

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2023 Research Updates

The Latest on FA Research Research is the answer to one day making FA a treatable, manageable disease. On this page you’ll find the latest updates on FARF-funded research and activities. Each quarter, we’ll update this list with our newly...

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Now Recruiting: Study to improve early detection of cancer and clinical care

Enroll in study The National Cancer Institute (NCI) investigators Dr. Neelam Giri and Dr. Sharon Savage have teamed up with the Fanconi Anemia Research Fund (FARF) as part of the FA Cancer Consortium to develop a comprehensive program to screen...

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