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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Sep 16th, 2022

Congratulations to Henry Ryan Fenyo, recipient of the 2022 Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York....

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Scientist Spotlight: Katy Pennington

Aug 8th, 2022

Individuals with Fanconi anemia (FA) have a significantly increased risk of developing anogenital squamous cell cancers, including vulvar, cervical, vaginal, and anal cancers. Treating anogenital cancers in individuals with FA can be challenging because they have extreme sensitivity to radiation...

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Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded

Jul 28th, 2022

New grants: Cancer Consortium The Fanconi Anemia Cancer Consortium (FACC) is a collaborative partnership between the FA community and a network of clinicians and physician scientists who have expertise in the diagnosis and management of FA cancers and FA cancer research....

Announcements

Happy 80th, Lynn Frohnmayer!

Jul 11th, 2022

Lynn Frohnmayer (center) surrounded by FARF leadership In the Fanconi anemia (FA) community, the name “Frohnmayer” carries a legacy like no other. Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF) in 1989 as a means to legally...

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Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

Jul 7th, 2022

The Johnson Family: Rebecca, Craig, sons Brett and Michael The beginning of Michael and Brett’s Fanconi anemia journey Our journey with Fanconi anemia (FA) began February 7, 2016 – a night we remember vividly. It was the first time –...

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FARF Launches Cancer Consortium

Jun 11th, 2022

Why cancer? When the Fanconi Anemia Research Fund (FARF) was founded in 1989, Fanconi anemia (FA) was thought to be a childhood blood disease that led to leukemia. Thanks to years of donor-funded research, we now know that faulty DNA...

Announcements

News

Featured Story

2024 Research Updates

Henry Fenyo Receives 2022 Winn/Byrd Award for Adults with FA

Scientist Spotlight: Katy Pennington

Research Report Spring/Summer 2022: Six Grants Conclude as Five are Funded

Happy 80th, Lynn Frohnmayer!

Three Bone Marrow Transplants, Two Brothers, One Disease: Meet the Johnson Family

FARF Launches Cancer Consortium

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