Noticing the changes During those final two years of hosting the 5K for FA when Eli was 13-14 years old, our family had also suffered several losses, one after another, and we could not catch our collective breath. Eli suffered...

My work Recently I became a principal investigator at UNAM, the leading University of Mexico. I maintain a strong interest in studying FA using additional and new technologies, including single cell DNA sequencing, single cell proteomics and single cell imaging....

In recent years, much of FARF-funded research has focused on ways to prevent and detect cancer, and to develop less toxic therapies to improve and extend lives. As the research expanded, so did our approach to addressing this critical need....

Slowly, as Levi grew, we noticed he was different than our other boys. It was tricky to tell if his sounds were happy or sad, he never slept very long, and his affect was somewhat flat. Our pediatrician recommended we...