Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
FARF continues to grow the support we provide caregivers, including in how to return to in-person events. During the recent Retreat for Adults with FA, one of the ways we sought to help caregivers feel seen and important was through partnering...
Stories
Congratulations to Henry Ryan Fenyo, recipient of the 2022 Amy Winn and Christopher T. Byrd Award for Adults with Fanconi Anemia. Henry is a recent high school graduate and is planning to attend St. John’s University in Queens, New York....
Stories
Individuals with Fanconi anemia (FA) have a significantly increased risk of developing anogenital squamous cell cancers, including vulvar, cervical, vaginal, and anal cancers. Treating anogenital cancers in individuals with FA can be challenging because they have extreme sensitivity to radiation...
Stories
New grants: Cancer Consortium The Fanconi Anemia Cancer Consortium (FACC) is a collaborative partnership between the FA community and a network of clinicians and physician scientists who have expertise in the diagnosis and management of FA cancers and FA cancer research....
Announcements
Lynn Frohnmayer (center) surrounded by FARF leadership In the Fanconi anemia (FA) community, the name “Frohnmayer” carries a legacy like no other. Lynn and David Frohnmayer founded the Fanconi Anemia Research Fund (FARF) in 1989 as a means to legally...
Stories
The Johnson Family: Rebecca, Craig, sons Brett and Michael The beginning of Michael and Brett’s Fanconi anemia journey Our journey with Fanconi anemia (FA) began February 7, 2016 – a night we remember vividly. It was the first time –...
Stories
