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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Scientist Spotlight: Joseph Hallett

In the Genome Stability Laboratory, we use cutting edge techniques to study the DNA damage response and inform the development of novel therapeutics. I am also a member of the PRECISE Laboratory (Proton research at The Christie and the University’s Division...

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Walker’s Journey

Something felt ‘off’ We couldn’t pretend we didn’t have concerns about Walker’s health early on. He endured stomach issues almost daily. Consults with gastro specialists got us nowhere, hearing that it was a minor and common issue. But holding him...

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Scientist Spotlight: Jacob Corn

The Corn Lab Name: Jacob Corn Institution: Institute of Molecular Health Sciences, ETH Zurich, Zurich, Switzerland Area of expertise: Genome editing, DNA repair mechanisms, genome-wide CRISPR screening, protein/organelle quality control My work:   I am the Professor of Genome Biology at ETH...

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Supporters ‘Endure for a Cure’ with a 500-Mile Bike Race

The Endure for a Cure RAGBRAI team This summer, a remarkable team of individuals united as “Endure for a Cure” in support of the Fanconi anemia (FA) community to achieve something truly extraordinary: bike over 500 miles while raising an...

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Ana Tabar Receives the 2023 Winn Byrd Award for Adults with FA

Ana grew up in the Dominican Republic, and in response to the needs for access to medication, diagnosis, treatment, and education for those with FA there, she established Un Corazon por Fanconi.

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Finding Hope, Unity, and Strength: The Transformative Experience of the FA Family Retreat

Hope We learned more about FA from nationally renowned doctors and researchers. They didn't sugar-coat their findings about this disease, but they did offer a consistent message of hope. More than a decade ago, the life expectancy for someone with...

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