My name is Mary-Beth Johnson. I’m 26 and I have Fanconi anemia. I climb mountains, make avocado roses, and I spend a lot of money at Target when I’m stressed. I don’t generally identify as someone who is sick, because...

Sibling relationships can be the longest, strongest and at times the most complex relationships in a family. During the formative years, siblings share life’s journey and all it brings. What is it like to be the sibling of someone with...

The holidays are a time to show gratitude and to give back. If you’re looking for a way to do both, consider joining the holiday campaign for FA research. Not only will you be helping those you know and love...

Our son is significantly smaller than his same-age peers. We know that this will become more of an issue for him socially as he gets older. Any advice? The more you accept yourself, the more others will accept you. We...