The global Fanconi anemia gene therapy program is now open in the USA and Europe. In Europe, a new study, known as FANCOLEN-2, is available at CIEMAT/Hospital del Niño Jesús in Madrid, Spain. In the USA, a similar study is now...
Announcements
Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
The global Fanconi anemia gene therapy program is now open in the USA and Europe. In Europe, a new study, known as FANCOLEN-2, is available at CIEMAT/Hospital del Niño Jesús in Madrid, Spain. In the USA, a similar study is now...
Announcements
People with Fanconi anemia (FA) have a 500- to 700-fold increased risk of developing head and neck squamous cell carcinoma (HNSCC) tumors when compared to the general population. Conventional treatments available for non-FA-HNSCC such as radiation therapy and chemotherapy are...
Announcements
FARF t-shirts through the years Overview: To celebrate FARF’s 30th anniversary, we are asking our community to help design an original, limited edition FARF t-shirt. The winning design will earn you a scholarship to attend the FARF Symposium in downtown Chicago in September...
Announcements
One of FARF’s guiding principles is to gather the best researchers and clinicians in the FA community every year to share updates in research and care. In late 2018, we held the 30th Fanconi Anemia Scientific Symposium in Newport Beach,...
Announcements
In 1983, Oregon parents Lynn and David Frohnmayer learned their two daughters, Kirsten and Katie, had Fanconi anemia (FA), a rare genetic disorder that leads to bone marrow failure, leukemia, and cancer. They would later find out that their third...
Stories
When FARF created guiding principles back in 1989, one was that each year, we would bring together researchers working on FA and physicians treating people with FA. They would spend three days sharing updates and concerns, brainstorming ideas and creating collaborations. In...
Announcements