Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
New approaches are needed for both prevention and treatment of squamous cell carcinoma (SCC) in patients with FA - approaches that have fewer and less severe side effects than chemotherapy and radiation therapy. The purpose of this Phase 2 study...
Announcements
Hola FAmilia ?? my name is Mary-Beth. At this year’s FAdult Meeting in Chicago, we did something special one day. I took over FARF’s Facebook on the first day of the FAdult Meeting to share a little behind the scenes...
Stories
Following a successful bid for an international support grant offed by FARF, Fanconi Hope in the UK and Fanconi Anemie Werkgroep of the VOKK (Dutch Parents, Children and Cancer Association), Netherlands, are setting up a new group called FA Europe. This will...
Announcements
Why gene therapy? We know that Fanconi anemia (FA) is caused by defects in any one of 23 different genes called “FANC” genes. If we could somehow repair or replace these defective FANC genes, we could treat or prevent FA...
Announcements
In my early high school days, I noticed that I had a knack for biology, and specifically, genetics. It has always made sense to me and it sparks joy in my life. I know what you’re thinking – very nerdy....
Stories
Do you feel content and balanced in your life? Do you live with a sense of purpose? Do you find ways to stay energized and connected to your community? Some people may answer yes to those questions, but for many,...
Announcements
