Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
*The following is a press release about the recent publication on FA gene therapy in the journal Nature Medicine. This press release was provided by the Center for Energy, Environment and Technology (CIEMAT), the Center for Biomedical Network Research on...
Announcements
In late 2017, for the first time ever, there were more adults living with Fanconi anemia than children living with FA (according to FARF’s registry). This reflects an emerging population of adults living with FA that was not present even...
Announcements
FA publication spotlight In the September 2019 issue of Blood Reviews, FA researchers published a paper reviewing the literature on Fanconi anemia. We asked the authors to provide a summary. Thank you, Dr. Blanche Alter. Authors on the paper: Fiesco-Roa MO,...
Announcements
Our Mighty Mouse Well before her diagnosis of Fanconi anemia (FA), our daughter Norah was a model in resiliency for us. Born at just five pounds and three ounces, she had the strongest heartbeat on the hospital floor, surprising us...
Stories
Every summer, families affected by FA come together at Camp Sunshine in Casco, Maine for five days. The Family Retreat (or Family Camp) is a special event that allows families to hear from expert FA researchers and physicians, to attend support groups...
Announcements
1. Find your people “I went from knowing one person with FA to knowing over 40! They know exactly what it’s like to have a dozen different doctors and some kind of test every month or so. They know what...
Announcements
