One group of people we often think about but don’t often directly address is caregivers. All of you partners, parents, siblings, grandparents, friends or family members, we want you to know how vital you are to this community. We want...

I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all...

For those patients (and parents!) in peds or reaching a transition, here’s a little encouragement: Transitioning to adult care with a rare disease like FA is a GIFT. Not everyone with our diagnosis gets to adulthood; enjoy this rite of...

Read about Dr. D'Andrea's FARF-funded research projects At the 2019 FARF Scientific Symposium, Dr. D’Andrea was presented with the Lifetime Achievement Award for dedicating his career to the advancement of Fanconi anemia research. Dr. D’Andrea has been a pillar of...