News

Featured Story

2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

FARF Statement on COVID-19

MARCH 13: Due to the ever-evolving impact of the coronavirus pandemic, FARF staff will be working remotely for the next few weeks. While we are equipped with the necessary technology to continue meeting our mission and providing service, this will...

Read More >

One Final Summit

I can’t tell you how much I have loved climbing for Fanconi anemia fighters. The main focus of “Your Rope Team” has always been to find a cure and give those with FA more hope. I would love for all...

Read More >

Words of encouragement for everyone transitioning from pediatric to adult care

For those patients (and parents!) in peds or reaching a transition, here’s a little encouragement: Transitioning to adult care with a rare disease like FA is a GIFT. Not everyone with our diagnosis gets to adulthood; enjoy this rite of...

Read More >

What’s the most important relationship you have in the FA community?

I thought of my first FA friend, the many encounters I have shared with the FARF staff, board members, families, and all the friends I have made since rejoining the community a few years ago. I thought back on this...

Read More >

Alan D’Andrea Receives Lifetime Achievement Award

Read about Dr. D'Andrea's FARF-funded research projects At the 2019 FARF Scientific Symposium, Dr. D’Andrea was presented with the Lifetime Achievement Award for dedicating his career to the advancement of Fanconi anemia research. Dr. D’Andrea has been a pillar of...

Read More >

Central nervous system abnormalities in Fanconi anemia

Fanconi anemia (FA) is associated with progressive bone marrow failure, cancer predisposition, and multiple congenital abnormalities. Brain atrophy and other abnormalities of the brain have also been reported, although the cause of these abnormalities and recommendations for clinical care are...

Read More >