In 2018, we managed to attend the German Fanconi Family Meeting. It was nice to meet FAmilies and find answers to many of our questions. In Germany, it was confirmed that Omar needed a bone marrow transplant as soon as...

In hindsight, while I wouldn’t wish the way we found out about Elliott’s condition on anyone, it gave us time to reflect and be prepared to fight for Elliott. Included in the test results was a link to the Fanconi...

What is toxic positivity? Toxic positivity is the excess and ineffective overgeneralization of a happy, optimistic state across all situations. This results in denial, minimization, and invalidation of the authentic human emotional experience. We see manifestations of toxic positivity around...

Caregivers are essential to the wellbeing of their loved ones. Often, the focus is on the person with Fanconi anemia, yet caregivers live their own FA journey. In an effort to hear more of these experiences, our friend Allison from The...