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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

Sewing Friendship and Love

Piper was the first friend Bella’s age that she lost to the same disease she has. It hit us all hard when the FA community lost Piper, but it absolutely devastated a then 11-year-old Bella. To this day she cannot...

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Intoxicating Gratitude

Thirty years ago, I was told that I had an incurable terminal illness called Fanconi anemia (FA). My father was alone when he received the diagnosis and was told not to tell the nurses, as the news would be too...

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Learning how to dance life

​This article was originally published in the FA Family Newsletter (Spring 2015). If you were to dance your life, what would it look like? A close friend posed this question recently and despite a host of hip hop and ballet...

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Finding Inner Peace in Chaos

Going out in public has always been a way for me to feel connected to the whole. Even if I wasn’t talking to anyone, just being surrounded by other energies and close proximity brought me both joy and the feeling...

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A Space for Caregivers

One group of people we often think about but don’t often directly address is caregivers. All of you partners, parents, siblings, grandparents, friends or family members, we want you to know how vital you are to this community. We want...

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