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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Scientist Spotlight: Agnieszka Czechowicz

I also oversee a basic science research lab that is aimed primarily at understanding how blood-forming stem cells work and how they interact with their environment with a goal to then alter these interactions to improve the function of the...

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Caregiver Profile: Mary Tanner

Caregivers are essential to the wellbeing of their loved ones. Often, the focus is on the person with Fanconi anemia, yet caregivers live their own FA journey. In an effort to hear more of these experiences, our friend Allison from The...

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Fundraising Wins: 2019-2020

2019 was a record-breaking year for fundraising at FARF. We saw a 32% overall increase in fundraising dollars, which was made possible, in huge part, to the number of families fundraising increasing by 10%. We are so proud of this...

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Our Journey to Emma

We eventually took a leap of faith and traveled to Chicago for a consultation. In our initial meeting we learned that our odds of conceiving a child were about 25%. However, if we then screened for FA and for a...

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Exit Interview

Read Sharon’s popular piece on the history of Fanconi anemia: No Longer an Orphan - the FA Story

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We Will Do Better

To the FA community, Currently, we are confronted with the challenges of two public health crises: the ongoing COVID-19 pandemic and the enduring system of racial injustice in the United States.The Fanconi Anemia Research Fund supports the Black community and...

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