It is not easy, but we do our best to live day by day. We have learned that we can laugh in the midst of pain. We work hard to seek answers for ourselves and others who are affected by FA in...

October 18, 2018, the sweet wait came to an end. During pregnancy, emotions are always on the surface. You imagine what it will be like to have the baby in your arms and even what kind of education you want...

Joanne Smith at a FARF Adult Meeting Joanne and Kevin at a fundraiser for Fanconi Hope in the United Kingdom You’ll Never Walk Alone When you walk through a storm Hold your head up high And don’t be afraid of...

Right after his transplant, and before Joel was discharged from MSKCC, we received the news that he had another condition called myeloproliferative neoplasm (MPN). At that time, we weren’t worried about it. We were just so overwhelmed by the love...