We asked Kathy to tell us a little about what motivates her to support FARF: “My niece and goddaughter, Emily Mitchell, is an FA child. I’d like to tell you a little about her. She was born prematurely in 2008...

To the Fanconi anemia community, I am writing to inform you that, due to the global health crisis, the Fanconi Anemia Research Fund (FARF) has made the very difficult decision to not move forward with the in-person 2020 Scientific Symposium and Meeting for...

Piper was the first friend Bella’s age that she lost to the same disease she has. It hit us all hard when the FA community lost Piper, but it absolutely devastated a then 11-year-old Bella. To this day she cannot...

​This article was originally published in the FA Family Newsletter (Spring 2015). If you were to dance your life, what would it look like? A close friend posed this question recently and despite a host of hip hop and ballet...