Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Congratulations to Maria Isabel Rodríguez Ribero! Maria is a mother, English teacher, master’s student, and community volunteer who lives in San Gil, Colombia. Now 33 years old, Maria was diagnosed at age 11. As a teenager, Maria remembers not understanding...
Stories
In hindsight, while I wouldn’t wish the way we found out about Elliott’s condition on anyone, it gave us time to reflect and be prepared to fight for Elliott. Included in the test results was a link to the Fanconi...
Stories
What is toxic positivity? Toxic positivity is the excess and ineffective overgeneralization of a happy, optimistic state across all situations. This results in denial, minimization, and invalidation of the authentic human emotional experience. We see manifestations of toxic positivity around...
Announcements
I also oversee a basic science research lab that is aimed primarily at understanding how blood-forming stem cells work and how they interact with their environment with a goal to then alter these interactions to improve the function of the...
Uncategorized
Caregivers are essential to the wellbeing of their loved ones. Often, the focus is on the person with Fanconi anemia, yet caregivers live their own FA journey. In an effort to hear more of these experiences, our friend Allison from The...
Stories
2019 was a record-breaking year for fundraising at FARF. We saw a 32% overall increase in fundraising dollars, which was made possible, in huge part, to the number of families fundraising increasing by 10%. We are so proud of this...
Announcements
