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2024 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

DNA strands

FARF Announces Head & Neck Cancer Collaboration with Stand Up To Cancer

People with Fanconi anemia (FA) are at a very high risk of developing head and neck cancers because of the underlying DNA repair problem in FA. Research is the key to understanding, diagnosing, and treating these cancers. That’s why the...

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How You’re Making a Difference: Zach’s Story

Zach’s mom recently shared: “FARF has been a big player in saving Zach’s life this year. Yes, it really is that simple. FARF has helped us find doctors and proper treatment plans every step of the way.” FARF Executive Director

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Research Update Winter 2020: Cancer, Fertility, Bone Marrow Failure

This report is an overview of research shared at the 2020 Fanconi Anemia Research Fund Scientific Symposium covering three main topics: solid tumors, fertility, and bone marrow failure. Solid tumors What is the issue and how does it affect people...

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How to Be Present for Your Friends This Holiday Season

A number of articles have been circulating lately on this very topic at this time of year. A piece I wrote entitled, “Friend, I See You This Thanksgiving” was shared and read exponentially more than anything else I’ve written. This tells me...

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A Ninja from the Desert

In 2018, we managed to attend the German Fanconi Family Meeting. It was nice to meet FAmilies and find answers to many of our questions. In Germany, it was confirmed that Omar needed a bone marrow transplant as soon as...

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2020 Recipient of the Winn/Byrd Award: Maria Isabel Rodríguez Ribero

Congratulations to Maria Isabel Rodríguez Ribero! Maria is a mother, English teacher, master’s student, and community volunteer who lives in San Gil, Colombia. Now 33 years old, Maria was diagnosed at age 11. As a teenager, Maria remembers not understanding...

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