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2025 Research Updates

Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.

Our Unwavering Pursuit and the Long Road to Answers

Slowly, as Levi grew, we noticed he was different than our other boys. It was tricky to tell if his sounds were happy or sad, he never slept very long, and his affect was somewhat flat. Our pediatrician recommended we...

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FARF Holds First Focus Meeting on Fanconi Anemia Neurological Syndrome

Because Fanconi anemia (FA) is a DNA repair disorder, the disease can manifest in many ways (bone marrow failure and cancer are among the top ones). There are also other manifestations of the disease that researchers don’t yet fully understand....

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Coping with Loss During the Holiday Season

For many, the holiday season is a time filled with excitement, gifts, delicious meals, and celebration, but for those who have suffered the loss of their beloved, holidays can be especially difficult. For those grieving, the holidays become a secondary...

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Scientist Spotlight: Sara Frias

What motivates me to work on FA: Patients with FA are my motivation. Knowing the importance of efficient DNA repair mechanisms makes you realize that we continuously live rescuing each one of our cells from potentially fatal injuries suffered by...

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Dr. Blanche Alter retires after more than 40 years in the Fanconi anemia field

Dr. Alter at Camp Sunshine during Fanconi Anemia Week If you’ve ever been to a Fanconi anemia (FA) Scientific Symposium or Family Meeting, chances are you attended an FA 101 presentation given by Dr. Blanche Alter. There’s a reason that...

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Stand Up To Cancer Announces New Research Team Focused on FA and HPV-related Head and Neck Cancers

LOS ANGELES – [October 28, 2021] – Stand Up To Cancer (SU2C) today announced the Stand Up To Cancer–Fanconi Anemia Research Fund–Farrah Fawcett Foundation Head and Neck Cancer Research Team. The team will concentrate on new approaches to address head and neck squamous cell carcinoma,...

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