The Johnson Family: Rebecca, Craig, sons Brett and Michael The beginning of Michael and Brett’s Fanconi anemia journey Our journey with Fanconi anemia (FA) began February 7, 2016 – a night we remember vividly. It was the first time –...

Violet (far right), with her siblings Emma, Fisher, and Tyson Hello, FAmily! My name is Paige, and my three-year-old daughter Violet was diagnosed with Fanconi anemia (FA) in 2020. Violet has three older siblings: two brothers and a sister who...

Dr. Velleuer with colleagues Mona and Christine, and Bella, who lives with FA

Noticing the changes During those final two years of hosting the 5K for FA when Eli was 13-14 years old, our family had also suffered several losses, one after another, and we could not catch our collective breath. Eli suffered...