Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
At just 18 years old, Cale Ferrin has already built a career as an actor, advocate, and creator. With appearances across TV, film, music videos, and ad campaigns, Cale’s passion for storytelling shines through each project he approaches. His work...
Stories
It is with full hearts and deep sadness that we remember our dear friend, long-time supporter, and former board member, Sharon Schuman, who passed away on April 23, 2025, following a tragic accident near her home in Eugene, Oregon. Her...
Stories
By Kelly McKenna My name is Kelly McKenna, and I’m a single mom to two amazing kids. One of them is an eight-year-old boy who has Fanconi anemia (FA). Logan’s medical journey started during my pregnancy at the 20-week anatomy...
Stories
By Sarah Borden Our lives changed forever the day we learned our son Eli was diagnosed with Fanconi anemia. Just days earlier, we had celebrated his fourth birthday with family and friends, blissfully unaware of the journey ahead. When faced...
Stories
“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...
Stories, Cancer, Screening
Institution: Laboratorio de Citogenetica, Instituto Nacional de Pediatría, Mexico City, México Area of expertise: Medical genetics, dysmorphology. My work: I am a medical geneticist from Mexico City, introduced to the field of Fanconi anemia (FA) by my mentor, Dr. Sara Frias, whom...
Stories, Research
