The acronym for a group of classical congenital abnormalities including Vertebral, Anal, Cardiac, Tracheo-esophageal fistula, Esophageal atresia, Renal defects, upper Limb defects, and Hydrocephalus.
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People with rare diseases like FA often rely on a combination of healthcare programs and insurance coverage. Any change that reduces access to care or increases out-of-pocket costs can have real-world consequences for our community.
To advance our commitment to mental health, FCF has partnered with Give An Hour (GAH), a national nonprofit dedicated to expanding access to no-cost mental health care and education.
Emily is much more than her diagnosis. She’s an athlete and an artist who loves playing soccer and basketball. She creates paper dragons for her friends, enjoys drawing, and is a proud Swiftie.