A cluster of conditions, including high blood pressure, high blood sugar, high triglycerides, and low HDL cholesterol, that occur together and increase the risk of heart disease, stroke, and diabetes.
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“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...
This virtual meeting is an opportunity for individuals diagnosed with Fanconi Anemia Neurological Syndrome (FANS) and their families to gather, find mutual support for navigating FANS, and hear from leading FANS physician and researcher, Dr. Stella Davies. Dr. Davies is...
Israel endured so much in his short life. But even in the hardest moments, he brought so much light. One of my favorite memories from his transplant journey was how he never went by his real name. The first doctor we saw when he was admitted asked him his name, and Israel replied, “Batman.” From then on, he cycled through names from his favorite movies: Randall, Pascal, and eventually Lewis.