Cytomegalovirus. A relatively common virus in the herpes family that causes mild symptoms in healthy people but can pose a serious health risk to immune-compromised individuals.
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This virtual meeting is an opportunity for individuals diagnosed with Fanconi Anemia Neurological Syndrome (FANS) and their families to gather, share experiences, and find mutual support for navigating FANS. Registration is required and participants must speak English as interpretation is...
The 2025 Scientific Symposium will be held in Minneapolis, Minnesota from September 25-27. We hope to see you there! What is the Symposium? The Scientific Symposium serves as a vital platform for the exchange of knowledge and ideas in the...
It took me weeks to come to terms with the fact that there were no easy answers. I couldn't change the past or the diagnosis, so I focused on educating myself and becoming Tinslee's biggest advocate. We underwent all the necessary tests, scans, and procedures, and spent a year going in for lab work and check-ups.