American College of Medical Genetics and Genomics. An organization composed of biochemical, clinical, cytogenetic, medical, and molecular geneticists, genetic counselors and other health care professionals committed to the practice of medical genetics.
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May 8th, 2025
If you asked me for a defining memory of our journey, it might surprise you. Some of my most cherished moments were the long hospital stays — the time I got to spend one-on-one with Hunsley, free from the distractions of the world.
Sep 25th, 2025
Emily is much more than her diagnosis. She’s an athlete and an artist who loves playing soccer and basketball. She creates paper dragons for her friends, enjoys drawing, and is a proud Swiftie.
Dec 3rd, 2024
“If I had waited another six months, my story wouldn’t be the same.” Katherine was born into a world shaped by loss. Her older sister, Gracie, was diagnosed with Fanconi anemia (FA) shortly after the family moved to the United...