Research is the answer to one day making FA a treatable, manageable disease. Here, you'll discover the most recent strides in FA research and activities funded by FCF. Every quarter, we'll bring you updates on newly funded grants, ongoing projects, and significant milestones.
Events
FA Connect | Rewriting the Holidays After Loss: Finding Strength and Comfort While Grieving
We recognize the holiday season can be difficult amidst grief, whether caused by the loss of a loved one, anticipatory grief, or living losses. Join Lori Krause for this workshop where participants will acknowledge and validate their emotions, then discuss practical tools to cope with grief during the holidays.
5:00 – 6:30 pm Pacific Time
Spanish interpretation services are available upon request when registering for the session. Please note that while we will do our best to provide interpretation, we cannot guarantee their availability.
FA Connect | Rewriting the Holidays After Loss: Finding Strength and Comfort While Grieving
The Latest
News & Events
We’re thrilled to share that Rena and Paul Rice, parents of two children with Fanconi anemia—Sydney (19) and Blake (25)—have made an extraordinary commitment to the FA community: a gift of $100,000 per year for the next three years to...
If you asked me for a defining memory of our journey, it might surprise you. Some of my most cherished moments were the long hospital stays — the time I got to spend one-on-one with Hunsley, free from the distractions of the world.